It’s common to have challenges when you are learning to care for your child at home, but with support from the care team and practice you will soon feel more confident.
When a child has CHD it impacts everyone in the family, so you need to talk about the illness with your other children and pay attention to their health too.
In time you will find the balance between protecting your child and giving them freedom, and you’ll get to a point where you are not constantly focused on your child’s heart.
You have an important role in supporting your child as they transition medical care from a pediatric physician to an adult CHD specialist who can help them stay healthy.
Empowering families with knowledge and tools for the CHD care journey