During your CHD care journey, there may be times when you feel uncertain and confused about the future. It’s very common to feel uncertain when you do not have all of the answers or do not know exactly what will happen.
Unfortunately, you cannot avoid uncertainty in medicine. A physician may give you a diagnosis or prognosis with vague terms like “might” or “maybe” that are not comforting when you urgently want to know everything about your baby.
While uncertainty is a fact in medicine, it can help to identify where the uncertainties exist and ask your physicians for any information that can give you more clarity.
Uncertainty can cause parents to feel helpless, inadequate, distressed, or anxious. So it’s especially important that you learn how to manage any uncertainty you have in a situation.
When there is not a clear path ahead, you can reduce uncertainty by learning more from your care team and filling in as many gaps as possible about your child’s heart condition.